
Can you imagine never being able to fall asleep on the couch, in the car, or even your own bed without being tethered to a machine? Today’s the day to step us as a hero for CCHS, one of the rarest diseases on our planet. Follow @CCHSnetwork to join this call to action and learn more and donate for a cure. #cchsday2020 #cchsheroes #cchsawareness